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| Web Sites |
Gazette International Networking Institute (GINI)
Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.
http://www.post-polio.org
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Greater Boston Post-Polio Association
Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
http://gbppa.org
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Harvest Center Post-Polio Page
Materials about PPS: including articles, audio tapes, the PPS Computerized Assessment Program.
http://members.aol.com/harvestctr/pps/polio.html
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How to Prevent Further Disability In Polio Survivors - Silver 1999
PPS expert lists things to do and not to do.
http://www.skally.net/ppsc/silver2.html
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Living With Post-Polio Syndrome
Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links
http://healthlink.mcw.edu/article/996372413.html
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New Jersey Polio Network
Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.
http://njpolio.org/
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North Central Florida Post-Polio Support Group
Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination.
http://www.postpoliosupport.com
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Post Polio Awareness Support Society Minnesota
State wide group of Polio survivors organized to assist other survivors.
http://www.ppassmn.org
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Post Polio Syndrome Responses
A personal web page with links to Polio/PPS and other Disability Information.
http://www.ppsr.com/
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Post-Polio Network of New South Wales Australia
PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability information.
http://www.post-polionetwork.org.au/index2.html
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Post-Polio Syndrome Central
Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
http://www.skally.net/ppsc/
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Post-Polio-Med Email List
Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
http://www.skally.net/ppmed/
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PPS Related Events, Seminars and Conferences
Calendar of non-commercial events concerning post-polio syndrome.
http://www.skally.net/ppsc/event.html
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PPS Survey
A survey for polio survivors with PPS
http://www.skally.net/pps_survey/
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San Diego Polio Survivors
Support group. Profile, activities, membership, calendar, photographs, contact information.
http://home.mindspring.com/~polio/
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Why PPS Is So Hard To Understand-Bollenbach 1999
Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
http://www.skally.net/ppsc/und.html
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