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| Web Sites |
"China Doll" Syndrome
Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
http://moondancer.150m.com/ehlers.html
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American Massage Therapy Association - The Hypermobile Client/Therapist
Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
http://www.amtamassage.org/journal/olcott2.html
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Arthritis Insight-EDS Tips for Surgery
If you or a family member with EDS needs surgery, read this and share it with your doctor.
http://arthritisinsight.com/medical/surgery/eds.html
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Coalition for Heritable Disorders of Connective Tissue
Research organization for genetic connective tissue disorders.
http://www.chdct.org
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Diagnose-Me: Treatments: Prolotherapy
Some EDS patients have obtained excellent results with prolotherapy treatments.
http://www.diagnose-me.com/treat/T85233.html
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EDS Today
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
http://www.edstoday.org/
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Ehlers Danlos Foundation of New Zealand
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
http://www.edfnz.org.nz
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Ehlers-Danlos Hope
A Syrian patient gives a personal plea for better medical support and research.
http://ehler.8m.com
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Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
http://www.ednf.org/
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Ehlers-Danlos National Foundation - Michiana Branch
Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
http://smackdabdesign.com/mednf/
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Ehlers-Danlos Syndrome Medical Information
Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm
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Ehlers-Danlos Syndrome Support Group
This site offers extensive information for patients and doctors, plus links.
http://www.ehlers-danlos.org
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Ehlers-Danlos Syndrome, Philadelphia Chapter
Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
http://hometown.aol.com/daddio5600/
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Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
http://www.eatonhand.com
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eMedicine - Ehlers-Danlos Syndrome
Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
http://www.emedicine.com/derm/topic696.htm
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HealthWise: Ehlers Danlos Syndrome
Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
http://hw.healthdialog.com/kbase/nord/nord240.htm
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Hypermobility & Fibromyalgia Support Site
Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
http://anaiis.tripod.com/hmedfm/index.html
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Hypermobility Forum
This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.
http://www.marge.com/hypermobility/
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Hypermobility Portal
Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
http://hypermobility.objectis.net/
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New York / New Jersey Ehlers-Danlos and Hypermobility
Offers a support, message and discussion center for NY/NJ ehlers-danlos patients.
http://disc.server.com/Indices/163893.html
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NORD: Ehlers-Danlos Syndrome
Information about EDS from the National Organization for Rare Disorders.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome
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Oral Manifestations of Ehlers-Danlos Syndrome
EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html
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Sandy Simmons' Connective Tissue Disorder Site
Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
http://www.ctds.info/
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The Hypermobility Syndrome Association
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more.
http://www.hypermobility.org/
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The Swedish Ehlers-Danlos Syndrome National Association
The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
http://www.ehlers-danlos.se/indexEng.html
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