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| Web Sites |
A Fight For A Cure
A personal story about life with lupus.
http://www.lupie.com
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But You Don't Look Sick?
A collection of articles, stories, book and product reviews, with health resources and a message board.
http://www.butyoudontlooksick.com
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KC Dockal alt.support.lupus FAQ
Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and procedures, and filing for disability in the US and UK. Also includes information on the usernet alt.support.lupus.
http://www.ghg.net/schwerpt/aslfaq30.htm
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Loonie's Lupus Page
Outlines different types of the disease, directory of support and informational sites, and share a personal experience.
http://www.geocities.com/thelooniegirl/
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Lupus and Art
Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about symptoms, treatments, and coping.
http://www.painterjayne.com/personalpageaboutmylupus.html
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Lupus Family Circle
Information about Lupus, news updates, forums for sharing personal experiences, a support group and resource links.
http://www.geocities.com/moonotter2/lupus.html
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Lupus Information Center
Health through knowledge and power: information, statistics, little known facts, common misconceptions, and more than 60 personal stories.
http://www.geocities.com/HotSprings/Spa/9534/
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Lupus Patients Understanding and Support
Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome.
http://www.lupus-support.org.uk/
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Miller, Cyndee
General information, personal experiences, a 30 year Lupus patient, with extensive links.
http://www.public.asu.edu/~cyndee74/
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My Personal Experience in UK
The effect of lupus on my life, information about lupus and support in the UK like benefits, care, wheelchairs, links to support groups and facts, a chat room.
http://www.freewebs.com/loopylupie/
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Ritter-Bright, Dionne
After 16 years with SLE she needs a transplant.
http://dionnesstory.tripod.com
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Sarah's Lupus Webpage
Directory of pamphlets, articles, and personal stories to learn more about the disease, coping mechanisms, and support.
http://www.geocities.com/sarahmcraig/
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Terri's Angels of Hope
Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure.
http://www.geocities.com/angelterri2002/
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The Lupie Bin
Offers information, support, stories and FAQs, as well as memorials, and a page in Spanish.
http://www.lupiebin.com/
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The Lupus Site
Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages of information.
http://www.uklupus.co.uk/
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Women's Info Page
Both general and personal disease information, and how to get free medications.
http://www.angelfire.com/mo/nut2oak/
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