Related categories: |
| » Top/Health/Conditions and Diseases/Musculoskeletal Disorders/Connective Tissue/Ehlers-Danlos Syndrome |
| » Top/Health/Conditions and Diseases/Musculoskeletal Disorders/Connective Tissue/Hypermobility Syndrome |
| |
|
| Web Sites |
A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
|
American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presenter.jhtml?identifier=4672
|
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/
|
Central Ohio Marfan Support Group
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
http://www.homestead.com/marfansupport/
|
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/
|
Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/
|
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com
|
Marfan Support and Information
Support group in New South Wales, Australia.
http://www.marfan.net.au
|
Marfan Syndrome
Comprehensive guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm
|
Marfan Syndrome
Article from eMedicine.
http://www.emedicine.com/PED/topic1372.htm
|
Marfan Syndrome Forum
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
http://hometown.aol.com/bjthaler6/myhomepage/
|
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html
|
Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
http://www.marfan-list.org
|
Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie
|
Polish Marfan Association
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
http://www.marfan.sprint.pl/
|
Sports and Marfan Syndrome
Article on the risks of sports participation.
http://www.physsportsmed.com/issues/2001/05_01/salim.htm
|
Swedish Marfan Association
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
http://user.tninet.se/~sda301a/
|
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharoah along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html
|
Yahoo! Support Group
Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
http://health.groups.yahoo.com/group/Marfan_Syndrome/
|
