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| Web Sites |
Anencephaly Awareness
Information including possible causes and future prevention. Also a personal story.
http://www.angelfire.com/mb/jessicasjourney/info.html
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Anencephaly Information
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
http://www.anencephalie-info.org/
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Anencephaly Net
An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
http://www.anencephaly.net/
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Carrying to Term Pages
Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
http://www.geocities.com/tabris02/index.html
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Faith Aminah Shabazz
Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
http://faithaminah.tripod.com/
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Moral Principles Concerning Infants with Anencephaly
Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
http://www.ewtn.com/library/PROLIFE/bcdanen1.htm
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Mourning Mommies
Online support group for women who have lost babies to anencephaly.
http://www.geocities.com/mourningmommies/
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NINDS: Anencephaly
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm
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