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| Web Sites |
Christians With Duchenne Muscular Dystrophy
Mailing list for Christians who have Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/ChristiansWithDuchenneMuscularDystrophy/
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DMD Pioneers Mailing List
A mailing list/support group for people living with Duchenne Muscular Dystrophy. Family, caregivers and friends of those affected by DMD may also participate.
http://www.dmdpioneers.org/mailinglist/
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Duchenne Muscular Dystrophy Support eGroup
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/Duchenne_Muscular_Dystrophy/
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Dysferlin
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
http://health.groups.yahoo.com/group/dysferlin/
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FSH Friends Forum
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
http://health.groups.yahoo.com/group/FSH_Friends/
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FSH Muscular Dystrophy
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
http://health.groups.yahoo.com/group/FSHmusculardystrophy/
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Limb Girdle Muscular Dystrophy
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
http://health.groups.yahoo.com/group/Limb_Girdle_Muscular_Dystrophy/
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MDA All the Way
Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
http://health.groups.yahoo.com/group/mdaalltheway/
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Muscle Disease
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
http://health.groups.yahoo.com/group/muscledisease/
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Myotonic Dystrophy 2
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
http://health.groups.yahoo.com/group/MyotonicDystrophy2/
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PROMM (Proximal Myotonic Myopathy)
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
http://health.groups.yahoo.com/group/PROMM/
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The Muscular Dystrophy Forum
An online support group for people affected by any neuromuscular condition.
http://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/
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