Facial Differences
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Subcategories found in Facial Differences:
» Apert Syndrome» Cleft Lip and Palate» Craniosynostosis
» Langer-Giedion Syndrome» Parry-Rombergs Syndrome» Stickler's Syndrome
» Treacher Collins Syndrome
 
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@ Smith-Magenis Syndrome
 

Web Sites
  • AboutFace
    International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
    http://www.Aboutfaceinternational.org
     
  • Acne Support Group
    Information and support on acne, including top ten tips, beauty tips and problems.
    http://www.stopspots.org/
     
  • Beneath the Surface
    Offers support and understanding to individuals of facial difference.
    http://beneaththesurfaceweb.com
     
  • Birthmark Support Group
    From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
    http://www.birthmarksupportgroup.org.uk/
     
  • Cancer Of The Eye Linkline (CELL)
    UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
    http://pages.zoom.co.uk/cell/index.htm
     
  • Children's Craniofacial Association
    Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
    http://www.ccakids.com
     
  • Crouzon's Bridge of Hope Foundation
    Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
    http://www.crouzonsbridge.org
     
  • Foundation for Faces of Children
    Expert information for families and health care professionals about craniofacial conditions.
    http://www.facesofchildren.org
     
  • John Hopkins Center for Craniofacial Development and Disorders
    Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
    http://www.hopkinsmedicine.org/craniofacial/
     
  • Let's Face It USA
    A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
    http://www.faceit.org/
     
  • Moebius Syndrome
    Moebius Syndrome support, information and resource site.
    http://www.moebius1.org
     
  • Support Works Online
    Resources to find or form support groups related to facial difference. Information on medical research.
    http://www.supportworks.org/cat806.htm
     
  • The Craniofacial Society of Great Britain and Ireland
    Information about the society, which is a multidisciplinary forum for specialists.
    http://www.cfsgb.org.uk/
     
  • The DRM WebWatcher: Facial Differences
    A Disability Resources monthly guide to online resources about craniofacial differences.
    http://www.disabilityresources.org/FACE.html
     
  • The New Face Foundation
    A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
    http://www.newfacefoundation.com
     
  • The Personal Side of Craniofacial Differences
    Personal accounts of living with craniofacial conditions, and related webrings.
    http://members.tripod.com/~Craniofacial/index.html
     
  • XP Support Group
    UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
    http://xpsupportgroup.org.uk
     
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    Facial Differences

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